Down's syndrome

Down's syndrome

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2 months ago by Anonymous Avocado

Down's syndrome
I gave birth to a son a few weeks ago who was unexpectedly diagnosed with Down syndrome. We were completely unprepared for this diagnosis and are considering adoption as an option. The thought of raising a child with special needs and caring for an adult with special needs for the rest of our lives is daunting and not something we are confident we can handle emotionally. My partner and I have both had our struggles with mental health in the past. We have 2 other children to consider as well. Advise me people.. I'm really thinking of adoption
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Down's syndrome
AP

3 months ago by Anonymous Pineapple

Arabella is our little miracle
Your baby girl has a 98% chance of having Down syndrome.” I can still remember the phone call from our obstetrician’s office as if it was yesterday. I felt shock, fear, sadness, and disappointment. Even though I was registered nurse and my husband is a physician, we didn’t know much about Down syndrome, other than some of the medical conditions that can accompany it, and we didn’t personally know anybody with Down syndrome. Two weeks later, we received some devastating news: our baby girl also had a life-threatening condition called Hydrops, and she was only given a 5 to 10% chance of being born and surviving. Doctors offered to terminate her, but we knew we would have her no matter what. It was an extremely emotional and difficult time. Every two weeks we went into the high-risk doctor for an ultrasound. The purpose of the ultrasound was to see if our baby girl‘s heart had stopped beating yet. We named our daughter in the womb - Arabella. It means yielding in prayer. We had countless people praying for her, and at around 20 weeks a miracle happened- the hydrops went away completely! Arabella was born right on time and was overall healthy. From the moment I held her, I fell completely in love, and felt nothing but peace. The sadness and fear was completely gone. From that day on, I considered my daughter one of the greatest blessings I have ever received, and every single day with her truly is a gift.
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Tips on befriending a kid with DS?
We're going as a family on a trip to the mountains, with two other families. It's going to be really exciting. It has been our routine to go around this time, somewhere where we can all take a breather and also get our son to spend more time in the outdoors. This time we're meeting other families, and one of the families has a kid with Down's Syndrome that is exactly our son's age. Ever since I found out I have been researching more about Down's Syndrome, wanting to learn more and understand. We met the family during the summer and when I saw the boy I knew I wanted to be buddies with him, to make him feel at ease. He and my son started off really well. And the family is so friendly and lovely to be around. Despite my friendly demeanor I think I froze within myself, being careful about what I say and do, feeling a bit nervous as I wouldn't want to cross boundaries or do something inappropriate or something that might hurt the kid. I would appreciate tips on how to make good company and on things to avoid doing or saying while on the trip. Thank you very much!
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Dieting struggles of my daughter, problems motivating
As a mother of a 23 year old who has downs syndrome I feel immensely proud of my daughter for being here, for her courage, for her lively spirit and curiosity. I only struggle to keep her on target with weight loss. I don't force her but I try not to be lenient. She craves sugar like crazy and sometimes eats low-calorie natural sweeteners like candy. When we're visiting relatives or family friends she can't have enough of dessert or anything that is served and teases me about taking more of everything, and about hiding it to-go. I try to be sensitive towards how she is feeling but firm enough to tell her not to do this, and remind her of our spoken agreements regarding the very things she does. My question is, how can I motivate her to stay on target and to reach the goal set for her?
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